This is my scoliosis story:
I was born in 1955 on a beautiful small farm outside Kongsberg, Norway. When I was 4 years old 2 things happened: my brother was born and my mum dicovered that something was happening with my back. I also complained about headache every day.
She took me to our familydoctor who sent me to a doctor for children in Drammen. He sent me to Oslo, to Sophies Minde the hospital that treated scoliosis.
My first doctor was prof. Alvig, a proper old,skinny professor with a bow 😏 They found out I had a S-scoliosis, idiopatic (cause unknown) and the degrees where 40+.
My first brace was a bodyplaster, it was over my left shoulder, around my body and down to my right knee! I wish I had a photo! A tiny little girl with this big plaster 😄 I could not sit straight on chairs but I learned to use my mum's bicycle! 🚴
After some months they decided that the plaster did not help me, so I got my Blounts brace.
The first was very simple, later I got Milwaukee with more pillows and straps.
I had to use these braces 24/7 for 8 years. When I was 15 I had my youth revolt and delivered the brace to the doctor and said I was fed up! The year before my mum died av malignt melanoma so I think it was part of both sorrow and beeing a teenager 💔
After these 8 years with braces my curves had increased to 60+ degrees! So I was not better, but without braces I think it would have been much worse. I don't know why I did not have surgery, but I am happy I did not!
I lived my life like everyone else,- studies, work, sports, hobbies and friends and family 😊
The first time I started to feel some pain in my back was when I was about 40 years old 💓
Then I ask for a new appointment at the hospital where I was treated earlier. The x-rays showed that my curves ahd increased to 90 and 85 degrees 😢 But I am lucky because it hardly show when I have clothes on! My biggest problems have been my daily headache (+ sometimes migraine) and some asthma (because one lounge has less space)
In 2003 I was on a discussionforum for women (this was before Facebook),- and one day I asked if there where other women with scoliosis in the forum? It was! So I decided to start a group for people with scoliosis in Norway and contacted the society for people with backproblems (Ryggforeningen i Norge) and our group was official during 2004, it still excist 💓
After a while I also started 2 groups on Facebook,- Skoliose Norge and Skolioseforeldre. They are growing and filled with lovely members supporting each other 💗
I have always been active but I have not been doing excercises like I should have at the gym, I only started May 2016 (and in September I started to blog about what I do at the gym). I have learned during this journey that my body is different from people with a straight spine,- I use other muscles and my body react different. But it is ok! Everyone is individual 💓 I hope I will get a super old age (I am only 62 now 😊), I noticed after a few months that my posture was much better, so I hope I will feel not so exhausted after a while........
With Dennis I have to go for walks every day, sunny,rainy,cold or warm weather 🌞⛅⛄
2 winters for 6 months each time we lived on my paradise island Gran Canaria ( I have lived there for many winters before I got Dennis) Lots of lovely walks in nice warm weather 🌞 I hope we can go back again! Warm weather is so much better for my body.
I hope you all are having a nice time? Big hugs 💖
I was born in 1955 on a beautiful small farm outside Kongsberg, Norway. When I was 4 years old 2 things happened: my brother was born and my mum dicovered that something was happening with my back. I also complained about headache every day.
She took me to our familydoctor who sent me to a doctor for children in Drammen. He sent me to Oslo, to Sophies Minde the hospital that treated scoliosis.
My first doctor was prof. Alvig, a proper old,skinny professor with a bow 😏 They found out I had a S-scoliosis, idiopatic (cause unknown) and the degrees where 40+.
My first brace was a bodyplaster, it was over my left shoulder, around my body and down to my right knee! I wish I had a photo! A tiny little girl with this big plaster 😄 I could not sit straight on chairs but I learned to use my mum's bicycle! 🚴
After some months they decided that the plaster did not help me, so I got my Blounts brace.
I had to use these braces 24/7 for 8 years. When I was 15 I had my youth revolt and delivered the brace to the doctor and said I was fed up! The year before my mum died av malignt melanoma so I think it was part of both sorrow and beeing a teenager 💔
After these 8 years with braces my curves had increased to 60+ degrees! So I was not better, but without braces I think it would have been much worse. I don't know why I did not have surgery, but I am happy I did not!
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| Me and my mum 💖 |
I lived my life like everyone else,- studies, work, sports, hobbies and friends and family 😊
The first time I started to feel some pain in my back was when I was about 40 years old 💓
Then I ask for a new appointment at the hospital where I was treated earlier. The x-rays showed that my curves ahd increased to 90 and 85 degrees 😢 But I am lucky because it hardly show when I have clothes on! My biggest problems have been my daily headache (+ sometimes migraine) and some asthma (because one lounge has less space)
In 2003 I was on a discussionforum for women (this was before Facebook),- and one day I asked if there where other women with scoliosis in the forum? It was! So I decided to start a group for people with scoliosis in Norway and contacted the society for people with backproblems (Ryggforeningen i Norge) and our group was official during 2004, it still excist 💓
After a while I also started 2 groups on Facebook,- Skoliose Norge and Skolioseforeldre. They are growing and filled with lovely members supporting each other 💗
I have always been active but I have not been doing excercises like I should have at the gym, I only started May 2016 (and in September I started to blog about what I do at the gym). I have learned during this journey that my body is different from people with a straight spine,- I use other muscles and my body react different. But it is ok! Everyone is individual 💓 I hope I will get a super old age (I am only 62 now 😊), I noticed after a few months that my posture was much better, so I hope I will feel not so exhausted after a while........
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| I check my bone density every 3. year. This is the last photo. The black parts are arthritis, and you can see my curves are pretty big. |
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| 7 years ago Dennis came into my life 💓 He was 2 years old, Lhasa apso (sacred dog from Himalaya) |
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| I like to challenge my self and last year I managed to reach a top just outside my hometown again,- 30 years since last time! Asthma was bad, but I did it! |
I hope you all are having a nice time? Big hugs 💖
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